Catching the Falling Angel

Some of us fly high and some of us fall. This is a falling time.

I had never heard of Polycystic Kidney Disease or Pernicious Aneamia, until yesterday. Today I was educated. I really didn't want to know, prefer to bury my head in the sand. It's autosomal dominant.

One phone call said it all. I was shocked, didn't believe what I was hearing, this is not happening, can't be happening.

At this time, she has refused Dialysis, and she is having an allergic reaction to the B12 injections, therefore needs blood transfusions. For the rest of whatever life she has left. There is no quick fix, actually there is no fix at all.

"Hello?" Her: " I want you to do something for me" Me: "Hmmm, does it need to be done today? Oh, you better tell me what it is first." Her: "I want you to organise an Enduring Power of Attorney" Me: "A what?" Her: "An Enduring Power of Attorney" Me: "What is it, and what's it for?"

The explanation was hard, the implications worse, the prognosis shocking. What do you say after hearing that? Of course I'll do it, no problems? She's basically telling me she's dying, and needs someone to take care of all aspects of her life. She doesn't want anyone else to do it. I am really angry with her. Go and get another opinion, do something. I don't want to do this, it's not my job, give it to someone else.

Me: .....................................................................................silence. Her: "Helloooo!! Are you listening?" (Of course I'm bloody listening, I'm dying inside, I don't know what to say) Me: "Um, OK. When do you want me to do it?" Her: "As soon as possible. Don't procrastinate, just organise it". Me: "Of course I'll do it, I'll get to it sometime this week, as soon as I can organise a day off". Her: "Allright, I'll hear from you soon. Bye".

The next day: Me: "Hi Mum" Her: "Hi Angel". Me: "How are you?" Her: "I'm well, and how are you?" (What do you mean, you're well? You're not well, you just told me yesterday that you weren't) Me: "I'm good". Her: "I forgot to tell you yesterday that Dr P said I needed to let you know that the PKD is autosomal dominent, and you need to tell your Doctor as soon as possible". Me: "And that means what, exactly?" Her: "It's hereditary, there is a 50% chance you have it, your Grandmother had them and both your Aunts, as well.". Me: "When did you find out all of this?" Her: "Oh, years ago, but I didn't take much notice, I used to call them 'polkadots on my kidneys, and they have spread to my liver and pancreas as well". Me: "When did you know it was hereditary?" Her: "Yesterday, Dr. P thought I already knew because I've had it for such a long time, before he became my Doctor. Me: OK, thanks. I'll make an appointment to see Dr. C .

I'll be in touch as soon as I've sorted somethign out".

http://wwwyesterdayschildrenbook.com/

Yesterday's Children

This is subject to copyright and written by my Mother, the book is Yesterday's Children by Elizabeth Yoel Campbell, and the 2nd edition is being released later this month. The book has been edited by Carolyn Karam-Barkley, who has done a brilliant job. http://wwwyesterdayschildrenbook.com/

"Although I am not quite 80 years old, I have yet experienced life as it must have been lived in the Middle Ages. For the first few years of my life I lived in a walled city with great iron studded gates and narrow cobblestoned streets, flanked by two storey high adobe walls. Small latticed windows pierced the walls at the highest level and strong solid doors, always locked, barred entrance to the stranger. What goes on behind those doors is impossible to tell. Is it a rich man's abode, light and airy inside, with priceless hand woven carpets, silk cushions, golden ornaments, perfumed lamps and bejewelled harem wives, or a poor man's home, a warren of dark rooms and darker passages, where maybe twenty families live, four, five, six to a room? No, no one can tell from the outside. For one does not want to attract the evil eye, nor the attention of the greedy and fierce tribesmen, who from time to time and without warning, descend on the hapless inhabitants of un-walled cities, to sack and pillage, then withdraw to their mountain tops, where no government troops dare to follow".

"Our town walls are as thick as they are high, and when all the visiting caravans bringing in their wares from far off places like Samarkand, Bukhara, Isfahan, Khoisan, Baghdad, Basra and places further to the East are safely in, the gates clang shut and afterwards only a special permit from the Governor, or knowledge of the password can let you in or out".

"Inside those thick walls are granaries and storage's for all the necessities of life to feed the inhabitants in times of siege or famine, and barracks for the soldiers who guard the walls twenty four hours a day, always on the lookout for trouble, inside or out".

"By sunset the caravans have arrived at their destinations in the great caravansaries to seek food, shelter and rest for the night, after their arduous day long journey from their previous night's shelter across the desert and the interminable mountains. They open out on to the great bazaars to give easy access to travelling merchants to barter or sell their goods, purchase local wares and make ready to set off with the caravan next morning".

"There are acres and acres of bazaars crisscrossing each other, covered and vaulted, the only daylight coming in from the skylights set 25 feet or more at the apex of the arches. To us children, the bazaars are an enchantment, a wonder filled Aladdin's cave, a visit there to be prayed for, to be dreamed about".

"Just before sunset, after the caravans are out of the way, the streets are swept clean and water from goatskins is sprinkled on the parched ground to cool and settle down the dust, in readiness for the call to evening prayer. I can still smell the fragrance of water on parched earth and the Petunias growing inside private gardens...and then, thin and sweet in the evening air, comes the lilting voice of the Muezzin from his high perch in the minaret towering over all other buildings".

"By now everybody is heading for home and wherever he is, on hearing the Muezzin's call "Lah, Lah el Inlah, Mohammad Rasul Allah" ( Allah is great and Mohammad is his messenger), a Muslim spreads his prayer rug, which he has carried with him all day, to answer the call to prayer several times during the day, turns towards Mecca and performs the rituals of his faith without embarrassment. The prayers over and the Muezzin now silent, he picks up his rug, shakes and folds it reverently and goes home to his waiting family".

"At our home, as in every other house, oil lamps are being lit now. Some are very beautiful, gold and ruby glass, others in poorer families are made of tin. In warm weather, most people have their evening meal and then sleep on the flat roofs of their houses, for the city is malarial and troublesome mosquitoes stay close to the ground, in the damp vegetation of the garden".

"Out in the street all is quiet now, gates locked and barred against the evils of the night. But on the roof tops all is light, alive with laughter and expectancy, for this is the time for the main meal of the day and the man of the house, having toiled all day, is eager for his dinner and time with his family. This is the time for fragrant pilaf, spiced yearling lamb, chilled sherbet and yoghurt and many delicious fruits of the land. The lamps and lanterns are alight, tablecloths laid, and dishes set out in readiness. The roofs have high parapets for safety and to guard privacy, but you know that people are on their rooftops all over town, because you hear laughter and whispering voices nearby, and see the reflected light from lanterns on parapet walls in all directions stretching in to infinity, or so it seems to me".

"It is quite dark now, the voices around us stilled in sleep. The servants have cleared the remnants of the meal and gone down to their own quarters somewhere in the depths of the house. Finally, we are sent off to bed to sleep under the stars, which is absolutely magical. The deep silence of the night descends and wraps us round in slumberous peace. For a while I lie awake on my back gazing at the stars in all their glory, so far, far away. But tonight they do not seem so far away. To me it seems that I could stretch out and pick one and keep it for my very own. I gaze and gaze, fighting off sleep, wondering if somewhere out there among those millions of worlds, there are other little girls who would like to be my friends and come down to play with me. As far as star gazing goes, I am a true daughter of those far off Assyrio-Babylonian forebears who first turned star-gazing into astrology and then into a science".

"Something wakes me up. Not a sound, (apart the perennial chatter of Sufi Chai, (the river) outside the city gates) light or whisper anywhere. I listen and listen and then-yes-it is the sound of donkey hooves on cobble stones down below. I run to the parapet and climb on to a chair. In the pitch dark I see a lantern bobbing up and down as it approaches and then just for a brief moment a man comes into my line of vision, running ahead of his master astride his donkey, to light the way. The master is a Mullah on a mission of mercy, perhaps to be at the bedside of a dying man. For no-one (except on illicit business) would be out at this time of night without a pass, or knowledge of the password. Papa, being a doctor, knows the password, which is changed every few days. The 'word' is passed on directly to Papa by the Governor himself, the two being close friends. Papa is at the Governor's compound almost every day, for there is always someone sick in his large household."

"As the Mullah's light is swallowed up by the night, I hear the Town Crier's voice approaching and every few metres he stops and calls out at the top of his voice 'It is now ...O'clock and all is well. Sleep well all of you true believers, for Allah is Great'. Then he too vanishes from sight. I still do not want to go back to bed for I am waiting for something special. Then I hear it, clippity clop, clippity clop, the sound of horses hooves of cobble stones and the chink of weapons on metal. They too come into view and by their lanterns I see they are armed to the teeth, fierce looking men - and they have to be. For this is the Night Watch and because of them we all sleep more soundly. They too vanish in the velvet darkness, the noise of their passage gradually diminished by the distance".

"There is a hush now and all the world is sleeping. The silence is so deep and eerie that I seem to hear dim, unintelligible fairy voices singing the songs of Arabian Nights Sirens and calling me from the stars above. Suddenly I am afraid and very lonely, I no longer like the night. Finally I find Mama and Papa's bed and climb in to be held in their arms and comforted, before being carried back to my own bed. I am happy now for the night holds no more terrors".

"The night is warm, the breeze has dropped and the poplar leaves which have been rustling all night as if singing a lullaby to the children of the land, are quiet too. All nature seems suspended, waiting for the rising of the sun and the renewed life it brings with it. That is good and I am happy, for I like playing in the sun".

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